2025 CTNNB1 Conference – CTNNB1 Connect & Cure

The CTNNB1 Connect & Cure 2025 Conference, held July 10–12 at Embassy Suites Waltham just outside Boston, brought together individuals with CTNNB1 syndrome, their families, clinicians, researchers, and industry representatives for an immersive and supportive multi-day gathering. Attendees also had the opportunity to participate in on-site assessments—such as natural history, EEG, a speech study, and biospecimen collection—without leaving the hotel, alongside creative child-focused activities inc